View Poll Results: Would you get a prothesis?

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  • Yes I would get her one and see what happens

    12 80.00%
  • Nah she sounds like she is fine without it

    1 6.67%
  • I would wait and see for....please explain

    0 0%
  • Other...also please explain

    2 13.33%
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  1. #1
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    Default Which would you choose?

    Poll to follow...hopefully

    I know there is no one on here that can really relate but maybe if you could put yourself in my shoes that would be great. I know each case is individual and my choice will not be based on the poll I just want to see what others are thinking.

    M is almost 2 she was born missing her right hand. She has the length so she doesn't struggle too much. She can hold things and manages pretty well. After watching her try to put on pants herself today it got me thinking. Should I be getting her a prothesis? I mean if I don't she will manage and figure out her own way but she is just SO independant and wants to "try" everything all on her own that I sometimes wonder if I can help by giving her that tool (a prothesis). It might make doing this a bit easier.

    From what I have read there are 2 schools of thought here. Get her one while she is younger so that she is use to it and it becomes a tool she can use if she chooses. Basically if you start young it becomes a part of them. Then there are the people that get them only as needed so that instead of a tool that becomes a part of them it is a tool that aids them at certain times. If that makes sense.

    I have been torn since day 1. I just cannot decide. Part of me wants to just get her one and see what happens but have we already waited too long? The other part is like she is totally fine and will adapt.

    I just don't know what to do!

  2. #2
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    She's 2?! So you cant really ask her about it then.

    If it were me, I would wait on it esp. if she is finding a way to do things without it. When she gets old enough, I would talk to her about it and ask what she wants. Tough one for sure though......

  3. #3
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    I think it would not hurt to consult a specialist. Find out further information and then make a decision. I would think it would be easier to learn when she is younger, but then would she need to change the prothesis as she gets older?

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    Thanks. My fear with waiting was that as she gets older it will be harder for her to learn to use it and she might resist it because it is new and weird.

    I appreciate other peoples views though. I can't always see clearly here so it is nice to hear what others think

    ETA: She would need several. As she grows so would the prothesis and they have just simple non-movable ones for wee ones and as they get older they get more functional.
    Last edited by LoveMyGirls22; 01-22-2011 at 09:08 PM.

  5. #5
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    I would hold off as well.
    She will adapt without the prosthesis the best she can and I am sure that she will surprise you with how much she could use her arm.

  6. #6
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    I would consult the specialist and at least explore the option.
    "Anything is better than lies and deceit". Leo Tolstoy

  7. #7
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    i agree with twinmommy.. adapting to new things is easier and faster when they are younger.. and jic the process to get one might not be a fast one.. might be something to consider now.. even if she can't speak yet or voice her opinion on whether she'd like or not.. when she does.. then she can say thanks mom for at least trying to make things easier... but i don't need it. heh mom you rock.. thanks for getting the help i really need. what does your husband think??

  8. #8
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    Quote Originally Posted by lacuna View Post
    I would hold off as well.
    She will adapt without the prosthesis the best she can and I am sure that she will surprise you with how much she could use her arm.

    She has and does I think we have held off this long is because she has the length. Most kids missing limb have them higher up so a prothesis helps with holding objects, crawling etc. She has length so so far there isn't much she can't do. She holds things in her arm (like hugs it) and then uses her left hand to move it around, open it, eat it...etc.

    She truly is amazing that is for sure! I just want to be able to say that I gave her every option/chance.

    ETA: DH is just as confused...so not much help...lol.
    Last edited by LoveMyGirls22; 01-22-2011 at 09:13 PM.

  9. #9
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    If the prothesis for younger kids isn't moveable, will it do much other than give her added length? Sounds like she is doing awesome now... I'd probably wait. But, really impossible to answer unless totally in your shoes.
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  10. #10
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    She can get a myoelectric already. I just want her to be independant and at this point I am not sure if the hand will help or not. I just don't want to look back at this time and think I should have done more but I don't want to push something on her that may not be needed. I mean eventually she will need something...if she plans to ride a bike or play sports.

  11. #11
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    I'm inclined to say to get one. If she has one, she can always opt to not use it, but if she doesn't have one she has only one option.

    Is there a community of people who have gone through a similar thing that you can ask? I guess amputees would be different, since they'd be 'missing' something where your DD is not... Do your agencies have other families you could talk to?

    ETA: if it's something that she's definitely going to need, I'd get one sooner.
    Last edited by AuntPetunia; 01-22-2011 at 09:50 PM.

  12. #12
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    She is a CHAMP through waramps and they will help in many ways. I belong to other boards where many children are dealing with this as well. There seems to be a line, those that do and those that don't and when I ask for advice I get a lot of “It is such a personal choice and only one you can make“ and while that makes sense it doesn't make my job easier.

    Maybe we will just meet with someone and see what they say. I do know the surgeon that saw her several times didn't see the need and told us that if we see a specialist they usually try to “sell“ you on it so you are sort of damned if you do and damned if you don't.
    Last edited by LoveMyGirls22; 01-22-2011 at 09:53 PM.

  13. #13
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    Oh! That's not helpful! Is it a board like here? Can you pm a parent that has used one earlier and a parent who put it off and ask for their experience? That might give you more to think about.

  14. #14
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    this might sound odd. but is this something that she can get a 'try on' sample. to see if she likes it.. i have no idea. just throwing out ideas.

  15. #15
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    That's a really hard decision, even more so when you have difficulty getting an unbiased view, even from a specialist.

    My line of thinking is this: if she had poor eyesight, would you say that she does wonderfully in spite of her limited vision, so why get her glasses? I'm sorry if that's a ridiculous comparison, I don't know if it's a fair comparison or not. But that's where my mind went so I think that I'd look into getting her the prothesis to see if it helps her even further.

    I know from a very personal point how difficult such decisions can be. I also know that it doesn't help that much to be told that it's a personal decision when you are looking for guidance, but it's true. I would definitely seek a board with some parents who have BTDT, but then go with your gut.

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