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  1. #1
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    Default chronic pneumonia anyone?

    My 25 month old DS is on his fourth straight month of pneumonia - he'll get the treatment (either amoxicillan or biaxin), it will go away for a week, then comes right back again. He's had three xrays done and is now on a high dose of amoxicillan again (day 7), his fever is still there and his cough is worse. I'm getting very concerned - the GP said if this dose of meds doesn't get rid of it, we'll have to get a referral.

    Has anyone else had this happen? Are there any bugs out there that resemble pneumonia? I know three kids at his daycare had RSV....

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    Lilia has gotten a virus (like rsv) that turn into pnemonia.

    my daughter is very prone to it. she gets it about 5 x a year. some times shes in hospital other times we can handle it at home.

    dont they do swabs to see if its a virus? they always do with Lilia to check for things liek rsv..
    jennifer mommy to 4 amazing kids!

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    thank you - I'm going to push the doc to do a swab.... Does RSV require antibiotics? He's been on two already and they haven't worked

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    I had pneumonia alot as a kid. I had chronic broncitius(sp?) unitl I was about 18 then outgrew it. On ocassion that would develop into pneumonia. Hope you get it figured out.

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    I dont think so. they would give her antibiotics for the pnemonia. but nothing would change if it was rsv.
    jennifer mommy to 4 amazing kids!

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    I deal with this every year with DS1. He has asthma and very bad lungs (black at birth, his lungs look like he smokes 2 packs a day!!) He gets pneumonia in the spring, which lasts about 3-4 months (and goes on all different meds, and prednisone 50 mg dosage at a time for 10 days) and again in early fall till late winter (that is always the worst) Nothing helps, and it just settles into his lungs deep. DS1 does not have use of his lower left lung, it has collapsed so many times, that it won't inflate anymore. The docs have been talking about surgery to take the dead tissue out, but want to wait till he is stronger.

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    wow Hockymomof3 - I don't blame you for wanting to wait - hope all goes well!

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    have they figured out the cause? is it always the same bug that keeps coming back or is it a different bug each time? does he possibly need a swallowing study to rule out aspiration pneumonia?

    poor little guy!
    “Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think." ~Christopher Robin to Pooh~

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    Quote Originally Posted by spout View Post
    have they figured out the cause? is it always the same bug that keeps coming back or is it a different bug each time? does he possibly need a swallowing study to rule out aspiration pneumonia?

    poor little guy!
    We have had many studies done, and many failed (he has never passed one yet, and he is 15 now) of a pulminary function test. He has had many surgeries to put cameras down into his lungs, and a biopsy. But it always comes back inconclusive. It is very frustrating. I have even taken him over to the states to the hospital (we have coverage) just said we were staying with family, and I paid for a full body CT, OHIP will not cover a full body CT here!! I even offered to pay for it here, and was denied.

    He even had tumors growing in his nasal passages and they had to be removed, as he couldn't breath very well at all with them in.

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    It could possibly be an asthma exascerbation. The pulmonologist told us that they often mis-diagnose as pneumonia from the x-ray as it looks similar. That could maybe explain why it is not responding to the antibiotics.
    Biaxin is a horrible antibiotic, very harsh but doesn't work well IMO. My daughter did not respond to it at all and continued to decline until we changed it after 5 days on it.
    I hope you get something figured out soon!

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    we finished the high dose amoxicillan and its still there (a bit worse in fact)... he's on yet another med ( I cna't recall the name of this one) for 5 days, then another chest xray Monday. If that fails, then we're off to a pedatrician for a second opinion....

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    Quote Originally Posted by ButterflyEffect View Post
    It could possibly be an asthma exascerbation. The pulmonologist told us that they often mis-diagnose as pneumonia from the x-ray as it looks similar. That could maybe explain why it is not responding to the antibiotics.
    Biaxin is a horrible antibiotic, very harsh but doesn't work well IMO. My daughter did not respond to it at all and continued to decline until we changed it after 5 days on it.
    I hope you get something figured out soon!
    I was going to ask about asthma too, my youngest dd has it and has had a cough since Oct. It goes away for a few days at a time and then comes back. It's better since she was put on asthma meds but not gone. I know Dr. Lyttle told me if I took her for xrays' that they would likely treat it as pnmemonia as it would look the same. Maybe ask for a referral to Dr. Lyttle he is fantastic! Good lUck
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    Hockeymom - that sound's like my twins.

    The first 3 years they were born they spent more time in the hospital then out of it.

    Then it went down to about 1 hospital stay every 2-4 weeks.

    Same thing - lungs would fill with fluid = pnuemonia = 2 weeks in the hospital. Go home and after a week - repeat.

    Went on for years. I've had to call 911 more times than I can count because there was so much scar tissue in their lungs they would collapse. They thought it was CF but luckily not and now at 11 years old are much more manageable.

    I am a little shocked that the Dr. hasn't done something sooner besides antibiotics. My boys get chronic phnuemonia but always get treated with prednisone because it's not pnuemonia from a virus but more because their lungs aren't developed enough to keep the naturally occuring fluid in their lungs moving. So it builds up and causes the pnuemonia.


    Also - they are 11 and have never had cough syrup in their life. The specialist said there is a big difference between a healthy child who has a tickle in their throat and a child with breathing problems who coughs. He said when child with breathing problems coughs it's the body's natural way of moving the fluid around in the lungs to prevent the pnuemonia. If you give them cough syrup to supress that it actually just makes it worse.

    I'd go back and ask him for that referral. 4 months seems like a really long time for that to be going on for. I'm not a dr but have been there with my own boys.

    Good luck! I hope the little guy is feeling better soon
    Deb - proud wife and mum of identical twin boys and a baby girl


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    HAve you addressed allergies/food sensitivities at all?
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    Quote Originally Posted by SafetyMumma View Post
    Hockeymom - that sound's like my twins.

    The first 3 years they were born they spent more time in the hospital then out of it.

    Then it went down to about 1 hospital stay every 2-4 weeks.

    Same thing - lungs would fill with fluid = pnuemonia = 2 weeks in the hospital. Go home and after a week - repeat.

    Went on for years. I've had to call 911 more times than I can count because there was so much scar tissue in their lungs they would collapse. They thought it was CF but luckily not and now at 11 years old are much more manageable.

    I am a little shocked that the Dr. hasn't done something sooner besides antibiotics. My boys get chronic phnuemonia but always get treated with prednisone because it's not pnuemonia from a virus but more because their lungs aren't developed enough to keep the naturally occuring fluid in their lungs moving. So it builds up and causes the pnuemonia.


    Also - they are 11 and have never had cough syrup in their life. The specialist said there is a big difference between a healthy child who has a tickle in their throat and a child with breathing problems who coughs. He said when child with breathing problems coughs it's the body's natural way of moving the fluid around in the lungs to prevent the pnuemonia. If you give them cough syrup to supress that it actually just makes it worse.

    I'd go back and ask him for that referral. 4 months seems like a really long time for that to be going on for. I'm not a dr but have been there with my own boys.

    Good luck! I hope the little guy is feeling better soon
    We have DS1's more under control now too, other than spring and fall/winter. Expecially when he caught H1N1 last year, he was so sick, and the doctor didn't start him on anitibiotics right away and it developed into pneumina (sp?) That one took about 8-9 weeks to get rid of. And he still has the after effects from it, sleeping after school (gets worn out really fast with only 1 good lung). And he can't do any sports at all now.

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