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Old 03-04-2010, 01:37 PM   #1 (permalink)
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Default Just annoyed.. but what else is new? Rant, rant... could be longer if I had the time

How did my morning go...

(1) Wanting to step up and beyond the expertise of my pediatrician I had requested a referral to Dr. Frid last summer. A couple of weeks ago I learned that this referral had not gone thru for what-ever the stupid administrative error. I ensured it was sent off at that time. This morning the pediatrician's office called to say that the requested referral was denied because we are out of the catchment area. We should go to Hamilton. Duh? I thought Waterloo Region was within the catchment area. Besides, how helpful is it to me to be told to go to Hamilton without any further details? I know Kitchener has no Dev. Peds and my pediatrician's office was no help. I asked who they refer to... they didn't know and they had no contact info for me to follow-up personally with Dr. Frid. Really, I should not be the one researching medical specialities and specific doctors who work in them so that I may get my kids seen.


(2) Still on the topic of chatting with my peds office... they were no assistance contacting my cardiologist (Sick Kids) to ensure the concerta script is safe for Daegan with his VSD. I called the cardiologist myself yesterday and talked to the very blonde (no offense to the blonde mommas out there) receptionist who had no clue what I was talking about. I then called my pediatrician's office and left a message informing them that I had called the cardiologist myself (providing the contact number I used). I questioned what I had to do to make this a priority for them to follow-up on. This morning the pediatricians office told me they heard back from the cardiologist.. he sent a one sentence note which sounded very non-committal, either way. I asked for a copy of this to be sent to my home address. Uhgg... come-on now, you need to know with some degree of confidence that a med is safe with a cardiac issue. I plan to take to a pharmacist next.

(3) Still trying to get some action towards obtaining a psychological assessment done. The school board is strictly sricking to the "we won't touch him because he is too complex of a case" but go get one. They have no recommendations where I ought to go to obtain one. I've had countless discussions with the board psychologist on this topic.. she's no help. I have a line through a social worker who works the genetic clinic at Sick Kids but she is now on maternity leave.

(4) Daegan was observed at school yesterday by someone at the board office to determine where he would be best fit into a congregate classroom next year. The principal called to tell me a site has been suggested. A site? I was initially told several would be picked out for me to visit. I'm not feeling too good about this as I immediately recognized the name of the person who came to do the observing. It is someone I had numerous telephone conversations with last year when I was in the midst of fighting to have Daegan retained. This is the person who repeatedly lied to me... referencing board policies that did not exist and spreading other innacurance that got the EA I adored in trouble. I now need to deal with her again?


Just a very brief sampling of how I spent my morning today... DOING OTHER PEOPLES JOBS that prevent me from doing the chores I need to do... like complete my financial statement for my lawyer... jobs I have not had the time to complete thus making my look like an idiot.

Oh yeah.. on top of all of Daegan 's stuff, I juggle taking Taylor to her weekly counselling sessions and now I get to start juggling my own health issues... viral neuronitis and I go in for a CT scan on th 15th to investigate a mass on/in my right ovary. Something I maty or may not need to find childcare for because I still do not know if my dumb-assed ex will have the kids over march break.

Uhhgggg..... ok, now I feel a little bit better... now off to chug through this financial statement before the kids get home from school
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Old 03-04-2010, 02:01 PM   #2 (permalink)
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Hugs, I hope the day gets better for you! It sounds like a difficult time. Good luck and I hope everything pans out well for you! Here's hoping your CT goes smoothly and finds nothing serious!
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Old 03-04-2010, 02:03 PM   #3 (permalink)
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Hugs!!
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Old 03-04-2010, 02:06 PM   #4 (permalink)
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That sounds so stressful I'm so sorry and hope your day gets better.
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Old 03-05-2010, 03:32 PM   #5 (permalink)
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Hugs!!!
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Old 03-05-2010, 03:51 PM   #6 (permalink)
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Hugs....

is it possible for you to contact CPRI here in London, to see if they could give a referral in your area?

We worked them years ago, when we lived out of town and they were phenom!
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Old 03-05-2010, 05:35 PM   #7 (permalink)
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So sorry that your ped's office and the school are not being very helpful at all. Hugs!
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