when you can't provide what they need

[Leigh]

Hrm.. there has to be something somewhere..

Can you apply for ASCD? I think it might be covered under that.. (I still need to apply for both Noah & Matthew!)

[rosiemunchkins]

Sorry MOF that you are feeling this way. I wish I had some sound advice to hand over to you to solve this problem. All I can say is that you are doing the best that you can so don't be too hard on yourself. I can offer to watch the kids if you need to get out or have one-on-one time. I'm sure my kids would love some more friends.

[2xmom]

Originally Posted by mum_of_four

My understanding is that the SLP available through school is worse than what you get through TykeTalk, and he already poo-poo-ed TykeTalk.

That scares me! We're deciding to give JK a try afterall. We've had several meetings with the support staff, and were told that DS will be receiving ST every Monday. I hope they follow through. He currently has ST about once a week, and the principal said that they try to accomodate what they currently receive.

DS's doctors are always on top of the amount of therapy he receives. Although I don't really care for Dr. G, he personally called Tyke Talk and insisted that DS receive more therapy. Our therapist did follow through. That went on all last year.

[Tannaleigh]

We're about to get speech therapy at home. It's going to be recommended through our OT. I'm supposed to talk to her next week about it and she is going to evaluate to make the recommendation. I'll ask her if she has any suggestions... and also email my case worker as ccac... she is one giving woman and might just want to help...

In the mean time, just trying to help and asking us is a way to begin. I know its hard to the resources when you need them (which sucks) so I'll pm you with anything I find out next week.... GL!

[mum_of_four]

2xmom, I think you're going Catholic? I only hear about the public schools, so hopefully Catholic is better, it certainly sounds like it from what you've been saying.

I'm going to get the book recommended in some of Zoo's links - it's actually in the library right now, I can't believe it! My oldest was at TykeTalk also, and what they're doing with her seems a bit different than what they did with him, not just “repeat after me“ which is what my oldest got, but actually getting into her mouth and trying to position her tongue and teeth and lips correctly. I'll see what the book says. I think her problem has to do with not being able to position her mouth correctly. Like the signal isn't getting from her brain to her mouth muscles correctly? I wish I had emphasized that more yesterday. Sometimes she will want to tell me something and she'll say “Mummy.....(big pause)....I love you.“. I think she has something she wants to say but she can't figure out how to get her mouth to make the sounds right.

Leigh, what is ACSD? I bet I don't qualify anyway, I look very rich on paper, too bad it doesn't translate to real life.

I'm wondering if I am falling through the cracks a little bit here. My family doctor is basically letting TykeTalk handle it, except for when I had to ask for a referral. I don't have a regular pediatrician that I can ask. My family doc is good friends with Dr G so I know that is who she goes to for advice. Maybe I should also go back to my family doc?

[rosiemunchkins]

MOF, have you tried to get a pediatrician for your kids? I'm sure you have a great family doctor but perhaps a ped would be more apt to focus on your child's needs? I have a great one if you want her name?

[Leigh]

From my understanding, it's special funding for children's with special needs. I'm not 100% on the req's or any other info about it, in all honesty. I need to apply for it myself, like I said. So I don't know the nitty gritty, but Ihave the phone number, and am going to call and see what they say. I know they have an application you fill out, and one your doctor fills out and you send them off. lol

PM me if you want the number, and I'll let you know a bit more in a little while (I'm going to call today!)

[Tannaleigh]

I'd say go to the childrens after hours clinic.... my pediatrician is one of the pediatricians that works there... and she is great at just listening to what I want to happen. Just let them know that you feel you aren't getting the support you need... she'll refer you to every doctor in the world if you ask firmly enough.

And OH ya... the ACSD you have to make under 60000 a year for the whole family. Even we don't qualify because DH likes to work overtime....

[Ivveyy]

I dont relaly have any new suggestions for you..but I udnerstand. We were told to have Lilia speaking flunetly we would need to hire a SLP privatly as well as the speech she'll get at school. I dont know if thats do able for us..but I am going to look into it.

ACSD also depends on how much they think your child will need..before we were estimated that Lilia's needs determined that she would qualify for 175 a month, but based on how much we made (which was 50 000 a year) we didnt qualify. that was before Lilia was diagnosed a HOH and so we ended up getting covered for the 175 this year becuase of the added disability.

[Leigh]

okay, I just called them, and they are mailing me out two packages (one for Matthew, one for Noah).

Very polite guy, it is income based. Didn't mention the cut off though. Worth a shot at applying for it though, the worst they can say is no!

[mum_of_four]

Originally Posted by Ivveyy

but based on how much we made (which was 50 000 a year) we didnt qualify.

We're out then. Thanks for the suggestion anyway!

[tansie]

Everything you need to know (sortof) about ACSD (Assistance for Children with Severe Disabilities.)

Assistance for Children with Severe Disabilities (ACSD)

[Stepher]

Mof I havn't read all your updatees on your DD and I know nothing about all of this but I did have serious speach problems as a child (some which still affect me *ahmmm check out my spelling*) and although school speach therapist isnt the best I dont think it will hurt. It def. helped me and with school and tyke talk and what you may be able to afford it might just make all the difference. Also different places and therapists could be a benifit so it dosn't become too much for your DD.

Frustrating how this all works. Hopefully your house sells.

[MrsSunshine]

you know I hate to say it but the worst you could do IF your child's Dr. is willing to fill out his/her part if get their applications anyway and fill them out. THEN write a letter explaining your letter. I received alot of personal calls from our 'worker' and they really believe in helping kids no matter what by the sounds of it. As long as your not millionaires trying to milk the system they might be able to offer something. I actually forgot about the speech part. I m going to look into it as well. I don't know what we would have done if it they hadn't been accepted last month. They both went today and picked out their glasses. Nice ones too! for free 100% covered. between their medications, glasses and dental coverage I literally feel 1000 lbs lighter. but it couldn't hurt to try Dr. PM me or sittingpretty(?) i believe helped me if you need any help. IF you ask me ALL children should receive the care they need no matter what the cost (im not talking from the parents either) ykwim

[Leigh]

oh, and I looked on the website, the cut off is based on members in the family. The more members the higher the income allowable. I saw up to 65k I believe.