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  1. #1
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    Default I know I have said this before

    But why can my child not catch a break?

    DS2 had a special MRI on Thursday in London. The doc called today, it's not good at all

    DS2 now has developed ankylosing spondylitis, which is arthritis of the hips and spine. His spine is already showing fusing.

    I am so sad about this, DS2 is only 16 and this is pretty much a bad sentence on the rest of his life. The doc is switching his medicatons again, and now I have to come up with another $500 a month!!
    Last edited by hockeymomof3; 06-10-2013 at 04:04 PM.

  2. #2
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    I'm so sorry to hear that.

    Have you considered getting ACSD or getting DS2 on ODSP just to pay for his prescriptions?
    Kelly & Owen

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    I have called, waiting on an intake worker to call me back.

    We didn't qualify for acad before, so I'm not expecting them to say yes now.

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    contat the durg companies.

    If you can pull the meds off till he turns 17 1/2 you will then be able to get ODSP him by saying he pays room and board. It wont be a large check he gets but it will cover the drug costs

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    I called the drug companies last time, and trillium benefits and children's charities. I will just have to start back at my 2nd job and my ex will have to get a full time job with benefits.

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    Quote Originally Posted by hockeymomof3 View Post
    I called the drug companies last time, and trillium benefits and children's charities. I will just have to start back at my 2nd job and my ex will have to get a full time job with benefits.
    make sure acsd knows your ex does not have benifits and his income should not matter anyways the only part that should is what he pays for support

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    Quote Originally Posted by sittingpretty View Post
    make sure acsd knows your ex does not have benifits and his income should not matter anyways the only part that should is what he pays for support
    Ok thanks, I don't understand why they added my Ex's income, mine and my DH's last time.
    Last edited by hockeymomof3; 06-10-2013 at 04:37 PM.

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    Quote Originally Posted by hockeymomof3 View Post
    Ok thanks, I don't understand why they added my Ex's income, mine and my DH's last time.
    they need to look at HOUSEHOLD income your EX is not part of the household.



    Dad wins ACSD funding appeal | Family Resource Centre | Holland Bloorview Kids Rehabilitation Hospital

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    I'm sorry I know the feeling, sort of, except my son is too young to know that he's dealing with crap most days. I am not looking forward to the teen years, that must be so hard, as if they wouldn't be hard enough without all of this :/

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    Quote Originally Posted by sittingpretty View Post
    they need to look at HOUSEHOLD income your EX is not part of the household.



    Dad wins ACSD funding appeal | Family Resource Centre | Holland Bloorview Kids Rehabilitation Hospital
    Thanks, but I'm sure we will be denied again. The ceiling cap for a family of 5 is $68,000. DH makes way more then that.

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    Quote Originally Posted by hockeymomof3 View Post
    Thanks, but I'm sure we will be denied again. The ceiling cap for a family of 5 is $68,000. DH makes way more then that.
    This part

    As part of its ruling in John's favour, the Ontario Social Benefits Tribunal wrote: “The (income ceiling) chart is a self-imposed guideline and is not law. While an income table may be relevant in some circumstances, the Tribunal is not bound by it and must consider the whole picture. In this case, it is better for the health of the child, the family and society as a whole that the child continues to receive the medical care necessary.
    when they deny you follow the process of asking for an internal review becasue the Tribunal now has precedent of stating the income limit is NOT law. So while your family may make more than that you still quailfy by way of costs.

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    Thanks

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    I am so sorry S As if he (and all of you) don't have enough on your plates. Good luck working with everyone in trying to get at least some of the costs covered.
    Lori, Mom to Sydney, Paige and Easton

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    Goodness, as if you didn't already have enough stress! I hope you can get some help to cover that cost. That's a lot of money to come up with EVERY month!

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    Oh that poor boy I'm so sorry to hear this.


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