For those I have not had the privledge to have met on here. I am mom to three children two girls age 6 and 3, as well as a little boy 3 months old. My three year old is fighting cancer. Prior to her diagnosis she was given a simple diagnosis of developmentally delayed. She had a J tube placed etc. When she was diagnosed no one sat down with us and said here are the different programs that are available to your family to assist with supplies, funding for medical devices, respite etc, here is a number to call if you have questions regarding funding, etc. the last two years have been spent researching differnt foundations etc that may be able to help us. I am very curious about wheather we were just overlooked by three hospitals when it came to providing information like that above, or is there just not anyone who has the knowledge to sit down give parents all the information they can, with applications contacts etc. So I hope you have the time to answer this for me. I would greatly appreciate it.
Kim
